Siebenhuner Clinic

I spent two weeks at the Siebenhuner Clinic in Frankfurt. Dr. Siebenhuner is a true maverick and if he practiced his style of medicine in Australia, I have no doubt that he would be in jail. Germany is probably the only western country where doctors can provide treatments they believe to be beneficial to patients, without too much interference from the local medical establishment. They also have access to drugs that if prepared by a pharmacist, can be used even if the drug has no formal approval. For cancer patients with no other options, this is a god send, as it gives you a chance to try alternate treatments at the cutting edge of science.

My treatments at Siebenhuner’s revolved around 2DG (2-deoxy-d-glucose), a fake sugar which acts like glucose, but can not be metabolised. The idea is to clog up the cancer cells with 2dg and starve them to death.

To make the treatments more effective, I combined them with daily local hyperthermia to the liver, and IPT (Insulin Potentiated Therapy).

Initially the supply of 2dg was an issue and I started on a low 1g dose. At the end of the second week this was upped to 5g. In the future I am looking at 12g per day. I have not noticed any side effects thus far.

My health during the first week of treatment was not great. I had a lot liver swelling, pain and constant nausea, as the swollen liver compressed my stomach. Eating became a challenge and my daily meals consisted of piece of bread roll and a small pickled herring. No idea why, but the pickled herrings turned out to be one of the few foods I could keep down. I lost about four kilograms which is bad news considering how hard it is for me to put on weight. Things changed dramatically after my next TACE treatment, but that is another story.

My next challenge is to get a reliable of supply of 2dg that I can continue to take while outside of the clinic. Dr. Siebenhuner has been very helpful in facilitating this, so if things go as planned I should be able to take 2dg daily for several months. I am also looking at sourcing some from china. The Siebenhuner clinic has now become a permanent fixture on my monthly clinic tour and I expect to return next month.

Resources

http://www.ipt-zentrum.de/home.html
http://www.hyperthermie-zentrum.de/home.html

About Ren

I have been diagnosed with stage 4, metastatic colorectal cancer in October 2012, 3 days after my 44th birthday. There is no cure, but I am determined to go down the road less travelled to find one. I have setup this blog to document my journey and hopefully help others in the process. My view is that if there is a cure, it does not lie with traditional chemo, but with the immune system. Time will tell.
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